Rev. Soc. Bras. Enferm. Ped.2024;24:eSOBEP202441.
Building knowledge and welcoming children with myelomeningocele and their families: development and validation of an educational booklet
DOI: 10.31508/1676-3793202441i
Abstract
Objective
To construct and validate an educational booklet on myelomeningocele and to carry out content validation and semantic analysis.
Methods
Methodological study carried out in three stages: 1) a literature review, carried out in the National Library of Medicine (PubMed) and Virtual Health Library (VHL) databases, using the descriptors “myelomeningocele”, “genetics”and “environmental factors”; 2) development of a booklet, based on theoretical knowledge; 3) content validation and semantic analysis.
Results
The narrative literature review identified 14 articles which, after reading, were grouped into three thematic categories: definition, etiology and treatment. A design platform was used to build the educational technology. A 15-page booklet called “Getting to know Myelomeningocele” was produced, with accessible language and a scientific basis. The narrative is led by fictional characters, “Milo and his friends”, schoolchildren diagnosed with myelomeningocele, who explain the condition in a didactic and interactive way, with the aim of contributing to health literacy and training families in caring for children. The content validation and semantic analysis stages were conducted by a committee of expert judges and family members of children with myelomeningocele, respectively. Three rounds were carried out, obtaining a percentage of agreement equal to or greater than 80.
Conclusion
The educational technology developed has been validated and is suitable for use with families of children diagnosed with myelomeningocele.
