Abstract Objective To understand caregivers’ perceptions and experiences regarding congenital heart disease and the well-being strategies adopted during the children’s illness process. Methods A qualitative, descriptive, and exploratory study was conducted with 24 caregivers of children with congenital heart disease at a public hospital in Santa Catarina, Brazil. Data were collected through a semi-structured questionnaire, including sociodemographic and clinical information, and analyzed using Minayo’s Thematic Analysis. Results Four topics emerged: (1) Initial impact with the diagnosis: difficulties and overcoming them; […]