Abstract Once at home, Children with Special Health Care Needs (CSHCN) demand complex care from their caregivers. However, scientific knowledge regarding these children is insufficient of caring for, which led us to identify who they are, how they live and what is their demands of caring. An exploratory and descriptive study was developed with 25 caregivers and 28 CSHN followed-up at hospital of Santa Maria (Brazil). Data from interview and charts were analyzed. The results indicated that 50% of children […]