Abstract Cystic Fibrosis (CF) is a chronic disease with rigorous treatment and limited survival. Purpose of the study is to know the history of the family of the patient with CF who died. It is descriptive exploratory qualitative research. We interviewed four families. Analysis was by transcription and organization of reports; readings of the interviews, signaling the central ideas and identification of categories; and interpretation of information and cross between these and literature. Project was approved by the Ethics Committee […]