Abstract Objective To develop an educational booklet on caring for children with tracheostomies at home. Methods This is a methodological study carried out in 2024 and 2025 in four stages: conceptualization; development; implementation; and assessment. Assessment was carried out by specialists, stomal therapy nurses and nurses from the pediatric, home care and outpatient units of the Universidade de São Paulo University Hospital. After adjustments suggested by specialists, it was assessed by users, family members of children with tracheostomies. Family members […]

Abstract Objective To characterize the profile of families and adolescents with suicidal behavior. Methods This was a descriptive, quantitative study carried out in two outpatient clinics of the Department of Psychiatry at the Universidade Federal de São Paulo. Data was collected by consulting medical records, applying instruments developed by researchers to collect sociodemographic data, and constructing genogram and ecomap. The data was analyzed using descriptive statistics. Results Twenty-five people took part in the study (12 mothers and 13 adolescents). The […]

Abstract Objective To construct and validate an educational booklet on myelomeningocele and to carry out content validation and semantic analysis. Methods Methodological study carried out in three stages: 1) a literature review, carried out in the National Library of Medicine (PubMed) and Virtual Health Library (VHL) databases, using the descriptors “myelomeningocele”, “genetics”and “environmental factors”; 2) development of a booklet, based on theoretical knowledge; 3) content validation and semantic analysis. Results The narrative literature review identified 14 articles which, after reading, […]

Abstract Objective This study aims to understand nurses’ perceptions of their role in supporting the families of pediatric patients undergoing Extracorporeal Membrane Oxygenation. Methods This is a qualitative, descriptive and exploratory research, the participants mostly come from public institutions in the city of São Paulo. Data collection occurred through semi-structured interviews carried out with 14 nurses with a minimum experience of 6 months and completed in the first half of 2024. The data were analyzed using Thematic Content Analysis. The […]

Abstract Objective To analyze institutional policies of Pediatric Intensive Care Units (PICUs) for family participation in the care of hospitalized children. Methods This was a qualitative, descriptive and exploratory study, based on documentary analysis guided by content analysis and the Child and Family Centered Care (CFCC) model. Searches were made for Brazilian laws, resolutions and policies related to family participation in the context of PICU hospitalization, and a survey of all PICUs in the city of São Paulo was conducted […]

Abstract The objective of this study was to reflect on the importance of preparing the family to identify and treat the pain of children with intellectual disabilities. This is a reflection article which discusses the concept of a child with intellectual disabilities, the assessment tools available in the literature, the difficulty of the families to assess and treat the pain of these children and the assumptions of the Interactional Family Care Model to support the actions of nurses. This reflection […]

Abstract Objective: To identify the information needs of family members regarding the care of children undergoing ventricular shunt. Methods: This survey-type study was carried out at a university hospital in the city of São Paulo from May 2022 to July 2023. Data collection included information on the indication of the device, signs of complications, surgical procedure, care, and guidance received. Results: Thirteen family members participated in the study. Around half (53.8%) of the participants were able to explain the indication […]

Abstract Objective To describe the perceptions of companions regarding Patient and Family-Centered Care, and to analyze their association with sociodemographic variables and hospitalization locations during the COVID-19 pandemic. Methods This analytical, cross-sectional study was conducted in the neonatal and pediatric units of a public hospital between May and October 2021. Data were collected over a period of 30 days in four units, using the Brazilian version of the Family-Centered Care Perception Instrument for Parents. Results Ninety-four companions participated. The perception […]

Abstract Objective To carry out the validation of the Instrument for Measuring the Perception of the Family on Access to Information in the Neonatal Unit. Methods Methodological study, carried out with 85 representatives of newborn families hospitalized for more than 72 hours in the neonatal unit. Data were analyzed by psychometrics and inferential analysis. Results The validation of the instrument content by experts obtained agreement above 80%, Cronbach’s alpha of 0.86 and in the factor analysis it generated eight factors, […]

Abstracts Objective To discuss about care for premature newborns and their families in the context of COVID-19. Methods Theoretical-reflective essay based on current evidence and the principles of the Patient and Family Centered Care Model. Results Nursing care for premature newborns in the context of COVID-19 aims at prevention, control, early detection and timely treatment of those infected, in addition to the incorporation of strategies that enable, above all, the effective participation of the family in the care provided. Conclusion […]

Abstract Objective To analyze the implications of the COVID-19 pandemic for patient and family centered care in a pediatric hospital unit. Methods Reflection study based on the principles of patient and family centered care. Results The COVID-19 pandemic imposed the need to restrict the circulation of people in hospital services, due to its high transmissibility. In this way, new rules were established, removing the family, with consequences for the patient, the family and the healthcare team. It is observed that […]

Abstract Objective To describe the experience of a family caregiver of a child with a tracheostomy at home. Methods Descriptive research of qualitative approach with five family caregiver in a municipality in the North of Santa Catarina State (Brazil) on the year 2018. The data were collected through interviews and analyzed according to a thematic analysis. Results Six thematic categories were created: experiencing the delivery of news: the necessity of performing a tracheostomy in their child; receiving training and orientation […]