Rev. Soc. Bras. Enferm. Ped.2021;21(2):65-71.
Stories of children and adolescents that (co)live with chronic disease
DOI: 10.31508/1676-379320210000
Abstract
Objective
Reveal the life history of children and adolescents living with chronic illness, based on their own reports.
Methods
This is a qualitative descriptive study. Thematic oral history was used as a method, and relied on the Atlas.ti 8.0 software to organize data.
Results
Eight participants were interviewed. Four categories were identified: Changes in life; School break; Impacts and Perspectives and dreams. It was revealed that participants know about the diagnosis and recognize its implications in their daily lives, as the various restrictions caused. They described changes in routine, citing specific needs and hospitalization, but nonetheless also expressed their prospects for the future.
Conclusion
Feelings related to chronic illness were identified. It was possible to understand their description of what it is like to live with the disease in performing activities of daily living.
Keywords: Adolescent; Child; Chronic disease; Pediatric nursing