Rev. Soc. Bras. Enferm. Ped.2016;16(1):28-35.
“It is better to tell than hide”: the information as a right of the child with cancer
DOI: 10.31508/1676-3793201600004
Abstract
Method:
qualitative descriptive study developed in a specialized institute of pediatric oncology associated with an university hospital in the municipality of São Paulo, Brazil. Nine children diagnosed with cancer, aged 8 to 12 years, were interviewed. Data analysis followed the foundations of qualitative content analysis Results The theme “It is better to tell than hide” expresses the importance of the information for these children, and shows that despite their fear, it is the information that brings relief and keeps their hope in the healing. The analytical categories that compose it are: development of child own ideas about cancer and treatment; fear of the unknown; pursuit of the control of the situation and impacts of the knowledge acquired.
Conclusion:
the child wants to be recognized as a capable human being that seeks information about his/her health condition in order to comprehend the treatment and changes that will occur in his/her body and life.
Keywords: Access to information; Child; Child advocacy; Neoplasm; Nursing